Friday, December 28, 2007
Thursday, December 27, 2007
A Doctor's Appointment, A Television Debut & the Hutchcraft Family Christmas
Friday morning we went to see Dr. Holmes in Neosho. He thought Tennyson looked great and he weighed in at 9 lbs. 4 ounces. They measured Tennyson in retrospect to where he should be compared to other children his age and their lowest measurement is less than 3%. For our weight and length we were in the less than 3% percentile and for our head circumference we were at 3%. We also discussed how much Tennyson eats, how well he's digesting and how his stomach does following eating. Dr. Holmes recommended we go to part breastfeeding, partial formula, and the formula is to be soy formula as he's guessing his digestive issues are related to an inability to digest milk as well as he should.
He also found a hernia which we are watching closely and will monitor changes in, we pray it will take care of itself and resolve however it's possible surgery will take place at a later date. Dr. Holmes also discussed introducing cereal into Tennyson's diet and we are to begin that on January 21. If he just spits it out, we will give him another couple weeks and try again however Dr. Holmes thinks he'll be ready for it at that time.
Friday evening my parents, Ryan, Stephanie and Chase made their way to Joplin to begin our Christmas celebrations. Kelsey and Gary joined us Saturday morning and we spent the weekend, enjoying each others company and congratulating Kelsey, who graduated from Vaterott's cosmetology program last Wednesday. She also received high recommendations from her professors and was offered a position in a new salon in downtown St. Joseph that the campus director at Vaterott is opening.
We had a great time hanging out as a family, enjoying each others company and catching up on one anothers lives. Sorry I can't find the camera cable however when I do I will add pictures, they're precious. They all headed home on Sunday afternoon.
Monday morning the home health nurse came and did her check-up on Tennyson, he weighed 9lbs. 7.5 ounces and is doing great, he was satting 100% and has been without his oxygen for over a week.
Travis, Tennyson and I spent Monday and Tuesday together just laughing and reflecting on the year and all that's happened, I can't believe how far we've come and how much we've experienced, God has sure blessed us beyond what we deserve. The Christmas debacle that I have to tell you about is Tennyson bought Travis a set of golf clubs, they are really introductory and I got a great deal on them. I couldn't believe how inexpensive they were. I found out why however on Christmas Eve when Travis opened them and they were for a left handed individual. Silly me, who would have known you had to think about that sort of thing...
Christmas morning around 3:30 am the doorbell rang, granted we were awake as Tennyson had just woke up and guess who Santa had delivered, Ted, Connie and Trudy. They had come to drop Trudy off until Thursday when everyone else would join us for the Myers' Christmas.
Please be in prayer for my cousin Drew and his wife Melissa, they delivered their first born son, Eli Andrew Cameron Friday evening, Dec. 21 and there were some complications, including Eli experiencing a staff infection around his umbilical cord. He was transferred to Children's Mercy in Kansas City on Tuesday, Dec. 26 and is doing better but still fighting at this point. They are doing a spinal tap tomorrow to test for miningitis. I will post more as I know it.
We pray you all had a great Christmas and were able not only to reflect upon but to celebrate the reason we praise.
Love you all-Travis, Lindsay & Tennyson Myers
Tuesday, December 18, 2007
Unbelievable Morning
Otherwise he's doing great, he weighed 8 lbs. 12.5 ounces and was satting 100, without his oxygen since Sunday morning around 10 am. He is struggling with horrible belly aches that are keeping him from using the restroom because well, he's a pig, eating all the time and I can't quite keep up. So he's received a four ounce bottle each evening for the last three or four and is having a horrible time with it, so please pray for him.
Otherwise all is well, I got our Christmas cards ordered yesterday so my hope is you'll receive them by New Years :)...
I have to run, the lion is stirring.
All Our Love-
Travis, Lindsay & Tennyson
Monday, December 17, 2007
Fighting Sleep
Nothing too new has occurred lately other than the usual everyday occurrences. He is oxygen free however Saturday night he had several apnea episodes and we're not sure why so we put the oxygen back on him for the night. He usually pulls it off and we were going to use that as our cue to remove it so he wore it until around 10am Sunday morning. He has however been oxygen free since then.
Something that was rather funny, or is now happened in the middle of the night last night...Tennyson had a blow out a couple weeks ago, through his onesie and blanket right after his bath. Last night without thinking after his bath I dressed him in the same onesie with the same blanket, I should have known at that point what I was in for. About 3am I was changing his diaper, pulling the dirty one off when he exploded, all over his blanket, the sweats he was wearing, my hands, arms and legs but somehow we didn't get any on the bed, I don't know how but it was amazing. So after I got him all cleaned up, mind you the onesie was untouched at this time and back to sleep, all seemed well. This morning when we woke up around 8, he had peed through the onesie, and not just a bit like up his back and around his arms, it was crazy. So I think from now on I will know better than to pair that onesie with that blanket. So we went in only our diaper for a while this morning then our my first Christmas outfit which you can see in the pictures. Also posted are pictures from our hotel stay...
The home health nurse hasn't come yet today so I don't have any new news but will pass it along when I do. I can't wait for Christmas, I know he won't know what's going on, but we're so excited...
Love you all-
Travis, Lindsay & Tennyson Myers
Thursday, December 13, 2007
Home at last...
Tennyson has had a ton of trouble since we headed to the hotel with sleeping more than one hour at a time. He will not stay sleeping unless someone is holding him and patting his back...it's a hassle and sometimes annoying however I realize I will never get these moments back so I am treasuring them now. So yesterday he was up around 6:30 am and stayed that way until Travis held him when he got home around 6pm. He would doze between times but I couldn't hold him, there was too much to be done so he wouldn't sleep ten minutes once I put him down.
So we wrapped all the Christmas presents, did the laundry up, washed dishes, cleaned out the fridge and unpacked with him staring at me the entire time. He is so good, and doesn't cry much unless he's hungry or agitated however I knew he was so tired. Don't get me wrong the kid can wail, Travis has affectionately nicknamed him, "my little angry man."
So needless to say by the time we got everything done, and him bathed last night it was midnight when we were going to sleep. He woke up at 2am and I fed and changed him and then he slept until 6:30, I couldn't believe it. I am thinking maybe keeping him up all day helps...at 6:30 I did some patting to his back and he was back to sleep until almost 8 when the home health nurse called.
Lisa came by around 9:45 and he weighed in at 8lbs. 5 ounces and was 21 inches long. He's growing so fast, right before our eyes. He had a bit of a fit with his oxygen last night and they told us not to fight him any more so he didn't have it in his nose between 2 and 8 when I took it off. He was satting 100 this morning so Lisa said to try him off it at night and see how he does. If his monitors alarm we will put it back on but he is obviously showing us he can do it.
So now we're just hanging out, I'm hoping to catch a nap with him this afternoon, please pray for me as yesterday I began coming down with a cold. I talked to his pediatrician to see what was safe to take so will start that this evening. As for now that's all she wrote..
Love you all.
Blessed by the Blesser-
Travis, Lindsay & Tennyson Myers
Tuesday, December 11, 2007
D-Day
Alright a lot has happened since we left you yesterday...the power as I said yesterday was back on however that only lasted about an hour. So from around 2:30 until 8pm we were without power. I received an emergency back up battery for Tennyson's monitor however didn't need to use it though we were getting close, during the first outage the battery had depleted a bit however didn't get fully recharged while the power was on for that short bit.
So what to do, what to do...it was like a cave in our room however Tennyson and I were able to hang out, eat, sleep and do his business though he was dressed in layers and covered in blankets which didn't make him too happy. I must say this morning I was so glad the power was back on because he was beginning to show smells of being unable to bathe...I am sure while he was screaming in the tub everyone thought that I was beating the boy but he sure looks and smells better.
After that we headed out to Dr. Jordan's office as we had another check-up. There has been no change at this time so we don't have to go back for three weeks and will continue to watch it closely...then we returned to the hotel, took a short nap, cleaned up and Lisa our home health nurse arrived. She thought he looked so cute in his little puppy outfit and he weighed in at 8lbs. 2.5 ounces, I can't believe that's how big he would have been had we made it to today.
Please be in prayer for our families as we heard this afternoon our house now has power at it however we will stay at the hotel tonight and head home in the am. Our families however are without power. My mother has been called into the hospital as they're short-staffed so she will be working the next 48 hours probably from there. Just pray our parents, grandparents and siblings will be able to stay warm.
Love you all, sorry he's waking up and wanting to be fed...gotta run, duty calls.
Travis, Lindsay & Tennyson Myers
Monday, December 10, 2007
Another Day in Paradise
Nothing too exciting happened until Thursday when the home health nurse came back to check on him. He satted so well on 50ccs he's allowed to be off the oxygen for 12 hours at a time though Monday she told me to move him to only at night. He also received his Synagist shot which is the RSV monthly vaccine. I tell you I was almost angry because we pay a small (or large in my opinion) fortune for each dosage, approximately $1800 and they sent us a 100MG vial and he only needed 50, so I had to throw away half of the $1800 medication...I tell you what.
When she weighed him he was 7lbs. 8oz. so he sure made up for that small gain over the weekend.
Thursday some of the guys from the church and Joe Flynn (who also attends CCO) a local mechanic came over and picked up Travis' truck as the water pump went out right before we had Tennyson and in lieu of everything we hadn't made time to get it fixed. It was amazing, and such a blessing and they took it Thursday evening and returned it Friday night. We are so indebted and thankful for each of them and for the blessings they are in our lives.
Please be in prayer for Senior, one of the guys Travis works with, he had a stroke at the end of the week and was still being tested this weekend, I haven't heard an update today but will let you know when I do.
Anyways, mom came down and stayed with us Friday and she and I did some Christmas shopping on Saturday, I am all finished except for one gift though they aren't all wrapped yet. I was starting to stress about it because typically I have all my shopping done and all the gifts wrapped by Thanksgiving, so as soon as the tree goes up the gifts are underneath it. I do believe however I will have to create a new method because Travis shook his and was taking guesses that were pretty dead on though I wouldn't tell him so.
Saturday night/Sunday morning brought us into our current predicament as we received tons of ice down here. It's estimated that 50,000 people/homes are without power still now. We lost power at 3am and again at 5am on Sunday morning so we tried keeping Tenny as warm as possible until after church when Mark called. He had spoke with Travis earlier and some of the guys at the church were reserving rooms in a local hotel and they got one for us as well, so Tennyson had his first official hotel stay, it was amazing. I sure hadn't thought that far ahead and by the time we got here at 2pm to check in they were booked solid and turning people away.
Last year when we lost power like this, Travis and I spent a couple days at home freezing but decided you can't do that with Tennyson. We probably could have kept him warm (though when we left the temperature was below 60 in our home) however his oxygen concentrator and apnea monitor run on electricity so we were using portable oxygen tanks and praying the battery on the monitor would make it.
We checked into the hotel and had a good night though Tennyson is waking up every hour, I think it's new sights, sounds and smells but he's sure keeping me on my toes. Then this morning Travis headed to work (with both sets of keys as he gave Ted his house key while we were in the NICU and wanted to head home and turn off our water tonight) where they were without power however they sent him and Gail to KC and Concordia to get parts for the electricians to hopefully get some electricity back on here.
While he was away however a transformer nearby (we're at Rangeline and I-44) went down and we were without power here at the hotel from around 10:45 to 1 when it just came back on. I was a bit panicked as it was getting chilly and I wasn't sure I would be able to keep Tenny warm enough for very long. We made it however there is discussion as my dad and Ted have both heard we're supposed to get more tonight of taking Tennyson and I up north this evening.
As for the rest of the family...Connie got a new car, a purple Chevy HHR and I am sure she's stoked about it, I haven't got to visit with her though Travis did.
AND OUR BIG NEWS...Trudy is home, she got into Omaha yesterday so she's in KC seeing her physicians today for check ups and will be around for the next month. We're stoked she's back and can't wait until we get to see her though we're not sure when that will be. She is giving a presentation about her journeys at Grace this Friday night and I was hoping that Travis would be able to make it though I believe they are going to tape it for us. It will sure be good to see her, we've missed her tons, though God has truly blessed her and us in our time apart.
Thanks for checking in, I apologize its been so long however if I head north tonight it may be longer as my parents internet service, Cooks has been down since October...until I am able to write again, I tried uploading photos but the hotel server said no, my apologies.
Love you all.
Living Out Loud-
Travis, Lindsay & Tennyson Myers
Monday, December 3, 2007
Monday...Monday...Monday
Tennyson has started crying uncontrollably at times for no reason, I thought he was just fighting sleep but he has a clean diaper, a full belly and still cries, especially at night. The home health nurse came this morning and colic was discussed as that would be the only explanation she can think of. We discussed some possible things to try that could help ease his discomfort, though there is no cure for colic we will try a few things to help hopefully.
Tennyson weighed 7 lbs. 1.8 ounces so he didn't gain much over the weekend however otherwise looks perfect she said. She monitored his sat levels the entire time he was here and he never dropped below 100 so she turned him down to 50ccs and he now receives holidays for up to 6 hours daily so we're really excited about that. She said next week he will be at 25ccs which is room air and will only need to wear the oxygen during long naps and while sleeping so again we're thrilled.
I received a call from Freeman this afternoon because our insurance company hasn't given the pharmacy approval for his second Synagist shot (for the RSV) which is due Thursday so I called and had our case worker call so hopefully we'll receive it in the mail by Wednesday. I think its so strange that they send his vaccine to our home in the mail but what do I know.
Otherwise things here are going great, we're so blessed with his progress and he's starting to be awake for longer periods of time so we have some 'play' time in each day which is so fun.
I will update you again soon hopefully with some pictures...but for now be sure to visit Freeman's website as they've uploaded his photos now. I don't think they look like him any longer but be sure to look under his birthdate which was Sept. 24. Here's the link...http://www.our365.com/WebNursery/WebNursery/BabyFinder/BabyResultsByHospital.aspx?id=0. If however this doesn't work visit freemanhealth.com then look under babies online.
Love you all-
Travis, Lindsay & Tennyson Myers
Thursday, November 29, 2007
This week...
Monday, November 26, 2007
Funnies from our precious one...
This has been a great weekend, everyone but my sisters and Trudy (who's traveling the world) were able to come down and see Tennyson, it was great. We had such great food, and so much fun together. No one can believe how big he's getting, don't get me wrong, we're still too small for most of our newborn clothing but compared to where we started, we're huge. Double our size actually. He's really filled out as well as I'm sure you can see by the pictures which makes a huge difference.
Last night was another long one as he woke up every hour, almost exactly on the hour and just wanted to play, we're definately going to start doing baths before bed because once those are done and he's ate, he's usually out a good three hours. I'll let you know how it goes tomorrow. We'd had two good nights in a row so I guess I was like, we're over this hump, little did I know.
Then this morning the home health nurse came by a bit after eight and I had to wake him up, it was the first time since midnight he hadn't woken up on the hour, of course, of course.
He weighed in at 6lbs. 12.5 ounces so he's growing like a weed. She turned his oxygen off so we could monitor how much he's relying on it. In the NICU he needed it primarily during feedings however this morning since I had woken him up he was throwing a fit needing to eat about 8:20 so I fed him without his Os and the lowest we dropped was 95%. She turned him down to 75ccs from 100 and stated if he continues this well then next week, they will turn him down to 50ccs with holidays. Holidays are a few hour stretches where he doesn't have to wear it, she said we would probably start with 3-4 hours and see how he handles that.
So all the news from that front is good, we then tried to take a nap however everytime I would get laid down Tenny would cry until I would reposition him. He would then fall back to sleep until I tried to lay down, it was a vicious game so I decided to do laundry instead. When he woke up I bathed him, changed his leads, fed him and he's sleeping soundly now. He is wearing a very precious outfit so I am hoping to get some good pictures of him later today along with the finished Christmas tree and will post them when I have them.
Hope you all had a great weekend, and the Lord refreshed you in ways you couldn't imagine, He sure did me. Worship at CCO was so great, and the message was on "Whatever Happened to Gratitude??" Chad Ragsdale did a great job. The Lord really is blessing us beyond what we could have ever imagined.
When discussing Tennyson's age we were told to go by his adjusted age, so currently we're -3 weeks, isn't that hilarious, but in all actuality he's been with us 9 weeks today.
Know we love you all more than we can say and once I get the perfect picture I will get his birth announcements out.
Made for these Moments-
Travis, Lindsay & Tennyson Myers
Saturday, November 24, 2007
A Beautiful Baby, a good night and our Christmas Tree...
Friday, November 23, 2007
So many moments, so little time...
He's doing so great, the home health nurses are raving. Monday he weighed 6 lbs. 3 ounces which was a 4 ounce gain after being dismissed and this morning he weighed 6 lbs. 7 ounces so again with a four ounce gain. It's been so great having him here and being able to cuddle with him and watch all his facial expressions and his little quirks.
We decided that the NICU night nurses sure must have spoiled him because last night was the first night we weren't up every hour. The previous nights were so hard to get through as he was up every hour on the hour and just wanted to be held, I think maybe he was used to being held all night :). We tried everything, he has been put in the bouncer, the swing, his cradle, his carseat however the only thing that worked was mom sleeping in a corner on a quilt holding him which I know I'm not supposed to do because of the monitors but I couldn't think of anything else, we'd tried it all. He is however hopefully starting to get this figured out as last night he slept four hours the first stent and then two and two.
He has no problems however sleeping during the day. He'll be up to eat and be changed, cuddle till he's back asleep and then you can put him anywhere but laying flat on the floor and he'll sleep many times his four hours. So we're trying to be patient in this but pray for us, it's sure frustrating in the night when you don't know what to do for him.
We visited with Dr. Jordan, the optamolgist on Wednesday (it was a follow up exam) and he was diagnosed with stage one ROP (Retinopathy of prematurity). "ROP is a potentially blinding eye disorder that primarily affects premature infants weighing about 2¾ pounds (1250 grams) or less that are born before 31 weeks of gestation. The smaller a baby is at birth, the more likely that baby is to develop ROP. This disorder—which usually develops in both eyes—is one of the most common causes of visual loss in childhood and can lead to lifelong vision impairment and blindness."-Quoted from the National Eye Institute.
What this means to us at this time is that we will visit with Dr Jordan weekly to monitor and if we progress to stage three will then have eye surgery to alleviate it before reaching full detatchment and causing blindness. We will visit with him next Tuesday again as well as visiting Dr. Holmes the pediatrician on Tuesday.
With our monitors we have had several apnea episodes, so I am so glad that we have it. They occur almost always while he's sleeping and being held so there is question as to their validity however nonetheless I have to chart them and turn the chart into the pediatrician next week. I will let you know if any changes are made though I doubt they will be as during his home health checks he's been satting 100%.
So for us, that's really all that's happening, I apologize that I haven't updated more frequently and promise I will try to. If we can get our routine down, we'll have no trouble I pray. Know that we love you all and can't wait until June to show off our precious one.
Leaning on the Lifegiver-
Travis, Lindsay & Tennyson Myers
Monday, November 19, 2007
I Don't Want to Miss A Thing...
Friday, November 16, 2007
An apology for my poor attitude and Praises out the Wazoo
First a bit of an explanation for yesterday's post...
I was feeding him between four and five Wednesday afternoon and the nurse practitioner came by and said that we would be rooming in Wednesday night and going home Thursday night. I was so excited, we ran home and got the car seat, clothing for him to have his picture taken in, etc. I just couldn’t believe our journey in the NICU had finally come to a close and to boot one of the nurses we love was on duty on Thursday so she would be able to see us off. We were so stoked.
When we came in at 8 to feed him again I peeked in his room and they were bagging him, I just stopped, I couldn’t function. It’s scary when you’re child is bagged however that coupled with the immense disappointment I had when I realized we weren’t going home…just led to immense tears. I cried the entire time I nursed him at 8 and then went back to feed him at midnight.
I just wish they’d never said we would room in Thursday night and go home Friday, it just sorta knocked the wind out of my sails. Apparently they’re finding that he’s desatting with bottle feeds which we haven’t done but twice a day the last little bit because we’ve been nursing and he’s been doing great. So in discussion yesterday with Jeanne (as she's back) it was decided that Tennyson would be put back on oxygen and we would be taking home the oxygen and monitors (which we expected all along).
Now that I've had some time to reflect on the entire situation and to get over the emotions I am so glad we're still in the NICU, had we been at home, the stimulation techniques did not work and we would not have had the oxygen and therefore would not have been able to assist him in that way. That being said we would have had to call 911 and we don't live near an ambulance bay so it is hard to say how much irreprible damage would have been done to our little boy had we gone home. I can't thank the Lord enough that we were still in the NICU and that we will have the oxygen and monitors along with home health visits frequently that first month.
So now for how he's doing...since that episode he's been doing great, they were only putting the oxygen on him for feeds however it's hard when you get them home to only use it in that fashion as it's so upsetting to the little ones to have to tape it on and then take it off, etc. so it's a permanent fixture for us for a while.
So my apologies for having such a poor and emotionally overdriven post yesterday, I was having a rough day but that's not fair to make it sound like my world is ending...it was just crashing down a bit!! :)
He weighed in last night at 5lbs. 12.5 ounces, again an increase (we're almost back to where we were a few days ago) and he hasn't had an episode since he went to the oxygen at 3pm yesterday afternoon.
Travis and I will be receiving our oxygen and monitor training this evening and then we will be waiting until he gets to come home, there is discussion that if he remains episode free it will be sometime next week. What a great Thanksgiving this will be...
Anyways sorry for such a poor attitude yesterday, the emotions at time wear you out, but above all the emotions I am so thankful to the Lord that Tennyson is ours, is perfect and is beautiful.
Thank you for all your prayers and the time you give us, you don't know how much it means to us and how thankful we are for each of you.
Love you all...
Praising our Protector-
Travis, Lindsay & Tennyson Myers
Thursday, November 15, 2007
Pray for me...
There were talks of us going home in the near future however we had a horrible desat episode last night that has set us back at this point indefinately as the discussions have ceased. I am so anxious to bring him home though don't want to prematurely however didn't realize I would have all the emotions I do with that one episode.
He is doing great since then and is again oxygen free however he's kind of hovering so I am unsure how much longer that will last. The circumcision site looks great and they're talking of no longer needing vaseline or gauze at noon today it looks so good. He weighed in at 5lbs. 11.9 ounces last night so he's down some but that was expected following the MRI, sedation and circumcision.
Anyways that's all we know. We are clinging to the Father and know we're being lifted up.
All our love-
Travis, Lindsay & Tennyson Myers
Wednesday, November 14, 2007
How Great is our God...
Yesterday morning around 10:15 a.m. they removed him from his oxygen (they do this with every baby because for insurance purposes they have to fail thriving on their own to be allowed to take the equipment - oxygen and monitors - home with them). Needless to say, Tennyson has thrived on his own since then, which was highly unexpected. He has even made it through numerous breast and bottle feedings, so praise the Lord for that.
All day yesterday he was scheduled for an MRI that was pushed back and rescheduled and such. He finally had it around midnight last night so while they sedated him, through the MRI and then the bath he was given while sedated after the MRI he had oxygen on because they were afraid with him being out he would not remember to breathe. Once he was bathed it was taken off and he was fed by bottle so he's doing great. He weighed in last night at 5lbs. 12.7 ounces and growing like a weed.
Early this morning he had his circumcision done. The nurses said Tennyson did great, as did Dr. Holmes. There was no bleeding however as a thank you Tennyson had a blow out as Dr. Holmes did his work, bet he doesn't forget this kid for awhile.
So that brings us up to now, he's doing great, holding his own, the circumcision site is red but otherwise looks great, he ate right after the circumcision for a bit and will be hungry again soon I'm sure. Just wanted to let you all know how great our God is in that He's carrying our little one through all of this. I'm just thankful Tennyson won't be able to remember any of it.
There is mild speculation we'll be heading home in the near future from the nursing staff however Dr. Porte would like us to be 37-371/2 weeks and we were 36 yesterday so we'll see. We're not getting our hopes up because we've heard their speculation before. We will however let you know when we know. We will also post MRI results when we have them.
Again thanks for the prayers, we know we would be nowhere near going home if it weren't for all of you interceding for us. Know you are loved.
Excited in the Everlasting-
Travis, Lindsay & Tennyson Myers
Tuesday, November 13, 2007
An MRI, a fight and our beautiful baby...
I bet you're wondering about the fight...have you ever been manipulated and not realized it. I sure have and I hate that. Needless to say I received a call yesterday from Tennyson's case worker (just so you all know if you are ever contacted by a case worker who is contracted by the insurance company to be your babies advocate during their stay and assure you they're receiving the best and proper treatments, beware). She was so nice and wonderful at first calling once or twice a week to see how things are going, yesterday however I felt she was being rather pushy, pumping me for information on Tennyson like she hasn't before though his medical files are right in front of her. I mentioned that to Travis while we were on our way to the hospital as she encouraged me to ask the nurse practitioner if we could room in last night. For those of you who don't know (you're blessed) what rooming in is, it means we stay overnight in a postpartum room with Tennyson, just as we would have had he been full term and take him home the following day. Needless to say, we all know he's not quite ready for that yet.
I was outraged by this and of course it's another thing to worry about, but we discussed it and decided to let it go, she must have been having some mental lapse and confusing us with another patient. Little did we know...when we arrived at the NICU and were scrubbing in Dr. Porte stopped us and mentioned she had contacted him questioning why Tennyson was still here, he felt he needed to defend the reasoning to Travis and I. We were completely aware of why he was still here and knew he wasn't ready to go home, we assured Dr. Porte that we were very pleased with the care Tennyson was receiving and didn't want to be discharged early, which causes readmittance on pediatrics many times.
So by that time I was a bit angrier, then Jeanne, the nurse practitioner came into our room and reviewed with us the same information Dr. Porte just had as the case worker had contacted her as well, wanting her reasoning and rationale. We discussed with Jeanne what I was told by the case worker and all the pieces were falling into place.
They are trying to push our precious baby out of the NICU, sending him home on oxygen (which isn't a problem) but he has so many desat issues still that they don't at this time trust him on portable monitors which is what we would be taking home. We discussed the plan of care with both Dr. Porte and Jeanne and with the MRI today that will at least buy us a few more days however both they and Mara (the speech therapist who I found out today was also contacted) are going to be fighting those battles for us. When the insurance company begins denying our stay which will be soon (possibly today or tomorrow) they will be appealing it as he's not stable enough at this time.
Anyways all that to say, please be praying for us. It's just one more thing to have to deal with and somedays it's hard enough just to get through.
Okay enough about me...Tennyson gained again last night and broke the 5lb. 12 ounce barrier. In the middle of the night feedings he ate 70MLs and 90MLs (OINK, OINK)respectively so I would wager to say there will probably be another gain tonight.
He's looking wonderful and so grown up now, I can't believe he was seven weeks old yesterday and we're 36 weeks gestationally today. Amazing!!
Specific prayer needs for him right now are the MRI and his response to the sedation following the MRI, his circumcision which is scheduled for tomorrow morning, his respiratory systems continued development, allowing him to keep his breathing up while being sedated especially (when he gets really comfortable or into a deep sleep many times we forget to keep breathing), and that infection will stay away.
Sorry this was a tyrade and a tangent I just have to vent about what's happening before I allow it to consume me. Needless to say I won't be so naive the next time.
Love you all and thank you so much for your prayers, we're only making it because the Lord hears our (yours and mine) cries and is lifting us up.
Loved by the Lord-
Travis, Lindsay & Tennyson Myers
Okay so the beautiful baby part was to be more photos but blogger is down...I will upload them as soon as I can.








