Wonderful & Wacky Weekend

This weekend has been so crazy...

Saturday I headed up home for a baby shower which was wonderful and as soon as I (do you like how I use I though I'm going to make Travis do it...)figure out how to post pictures sent to me online I'll upload those for your viewing pleasure, it was wonderful. We have to be the most spoiled people on the planet. Thank you all for your generosity and being such a blessing to us. It is not unappreciated and you will have thank yous coming, I promise though when I'm not sure...

Rachel, Ruthy, Moriah Bond and myself headed up to Union Star around 8:30 Saturday morning to spend the day being blessed by so many (with Travis calling in the intermitent to rub in how much fun he's having spending the whole day with Tenny :)). It was wonderful and we returned to Oronogo and had the truck unloaded around 10pm. Travis and I then headed to the NICU to spend the 11pm feeding with Mr. Tennyson. I had missed him so much however I think he and dad were rather content without me for the day. Travis let me feed Tennyson his bottle as he had a few times already that day. They had increased his feeds from four bottles per day to five while I was gone however had some satting issues so they had gone back to four. I started the bottle with him but he was satting so poorly I couldn't finish so Travis finished it with him. It was good to be home and be able to sleep in our own bed but we were so worried about Tennyson that we didn't sleep as well as we'd hoped. They refer to it as "Weak White Boy Syndrome" which means that while in the NICU, white males seem to be the weakest, they have less fight in them typically than all females and males of other races.

Sunday morning we attended the 9:45 service at CCO which was great, Mark Bond was leading worship with Martin and I don't know why but I love it when Mark leads, I think probably because of our days at Central but it just seems to me that's how it should be. Anyways we then came in for his 11am feeding and were told they were moving him to three bottles per shift which is six total for the day. So we fed him at 11am, ran to Panera bread and Target and then back for his 2pm feeding. We had decided to skip the 5pm and let Patti cover it as I had so much laundry to do if we were going to have any clean clothes this week but it ended up working out great.

Tennyson struggled through the feedings again and we weren't sure if it was the way we were holding him or what but he kept desatting and they had to keep turning his oxygen up higher and higher. Patti took the five and tried several different techniques however it's just him. I don't know if he's worn out or what. At 8pm we headed back and Jenny was our nurse (YEAH!) and we did his feeding, he didn't just desat he turned gray several times with numbers in the low 40s rather than 100. So he was turned to 100% oxygen (though he's been weaned down since them to 28%)and 1.5 liters of flow. It was heartbreaking and we were so flustered. She decided to NG tube or gavage feed him at 11pm and then try again at 2am. When I called her she said he was having the same problems then and again at 5am and 8am when I was here.

So needless to say the nurse practitioner hasn't seen him yet, but the nurse today said his order is as tolerated and she and Trav and I think we're pushing him to far too quickly so she's going to gavage feed at 11am and I'll kangaroo and then we'll see about doing bottles every other feeding or something which would be four total for the day.

He weighed in Saturday night at 5lbs. 10.3 ounces and then Sunday evening weighed it an 5 lbs. 10.4 ounces. So that was a tiny gain but a gain nonetheless...more praises...

He also had routine labs as it was Monday morning however all his results came back within normal range though his hematocrit was down some from last week, when it gets low that's when we get transfusions. So that's another praise that is above the transfusion level but please be praying that the levels would increase.

So if during your prayers, you think of it, please be praying for our breathing and eating as well as warding off infection. Know that we appreciate you more than we can say. Thanks for always being with us through this journey, though it seems uphill right now I know the Lord will sustain us and carry us until we're over this hump and always.

All our love.

Rejoicing in the Redeemer-
Travis, Lindsay & Tennyson Myers