Tennyson is doing wonderfully, don't take that wrong from the title. I am just trying to find him a pediatrician as we'll have weekly visits with them for a while after being discharged and none of the Freeman physicians (except for three I was told not to call and one who doesn't have hospital priviledges) are taking new patients...even though we have insurance. It's crazy I am not sure what to do. One of the physicians who was highly recommended sees patients in Neosho but that's almost 45 minutes-an hour from our house. I am not sure what to do...any advice anyone???
Anyways Jeanne, the nurse practitioner said yesterday during her assessment of Tennyson that she thought he was looking a bit puffy (like he was retaining some water) however today he's looking much better. Last night he weighed in at 4lbs. 12.4 ounces so we're guessing he was retaining quite a bit of water which is why he gained only 0.01 ounces rather than the 2 or so he'd been gaining (makes me wonder how long he'd been retaining). Otherwise however he's doing great.
They started the eye drops and his eyes are looking great. Before they had a glazed or glossy look to them but that's even gone away now, along with the discharge he was having (makes us wonder how long the infection had been building unbeknownst (is that a word) to us).
Last night he did really well during his time with Travis and I however Travis didn't kangaroo as they were doing an admit (another new roommate, however she was term so she won't be there long) so we were behind the curtain with lots of commotion and they warned us we could be asked to leave at any time so we didn't get him all riled up, just held him but he did so great and it was wonderful.
They didn't change his feeding yesterday but reduced the amount of human milk fortifier they were giving him so they're weaning him off the additional calories so that's another great thing, closer to going home...in a couple weeks...
Today we have Candy and she's such a great nurse, she's always teaching us something new about their development or things to observe and what the babies signals are telling us. She was with us during non-nutrative and this was by far the best one, he did so great for like 1/2 an hour. Before we were lucky to get five minutes of his time, she was impressed and if I had known some of the things she had taught me she figures we would have been soaring along before now. Either way he's doing great and he and I are both starting to get this all figured out.
One thing that I guess he's had for awhile but no one ever mentioned to Travis and I is that he has a heart murmur. During Jeanne's assessment yesterday she mentioned she could still hear his murmur and I think I kinda freaked. She was surprised we were unaware as I guess he's had it for quite a while, since the PDA closed I believe. She said they're very common in preemies and his is very small but still it's there so we will especially be praying for that and if you'd join us that'd be great.
Tennyson of course is still perfect and beautiful, Travis and I are running home tonight to get some things ready for tomorrow's big TODO so hopefully we'll post some new pictures tonight, we'll see if we get everything done in our allotted time constraints. We have Jenny as our nurse tonight so that's awesome!!
Yesterday was the weekly Ronald McDonald house meeting and it's so great to get to know some of the other families in the house. When I first got there, Sarah was there for help to guide me and let me know when I didn't understand things what they were really saying or to give me pointers on things when I had questions. She was just there, with me, experiencing all of this and I don't know early on what I would have done without her. Now there's another new family there and I think the Lord put me there (just as He did Sarah for me) to be His light to them and help them though this difficult time. I also found out yesterday that in July they're having the tenth anniversary of the Ronald McDonald house so it will be great to get together with everyone and see at that time how much the kiddos have changed.
Please pray for them as their little boy was 24 weeks, an entire month earlier than ours. They are so precious so please upon remembering them lift them up.
Thanks again for joining us on this journey, you don't know what it means to us to know you're there interceding for us. Words cannot express our gratitude. Someday when we get home and I have more time (haha!) I will try and get birth announcements and thank yous out to you all. Please make sure we have your address, you can email me at carryinthecross@hotmail.com for birth announcements.
We love you all and thank you for the prayers.
Safe in the arms of the Savior-
Travis, Lindsay & Tennyson Myers
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8 comments:
The doctor your talking about in Neosho is totally worth it. He is in the office in Joplin on Tuesdays (I think)...but I will tell you this. The drive to Neosho in your car is better than waiting in Joplin waiting rooms with a bunch of sick kids coughing and sneezing when you are just there for immunizations. The wait is always short in Neosho making your wait/drive time time about the same. Plus, that doctor is very cool, laid back yet gives you the confidence you need that he knows what he's doing. His nurse practitioner in Joplin is just as amazing. If you can't get in to see the Dr., Rachel doesn't hesitate to see the NP instead.
Tennyson, Granny is glad your eyes are feeling and looking better. Your daddy blamed Granny for praying your weight gain away! (SMILE) Tell him it is only for one day and Granny really, really needs a picture of you in your little outfit! Tennyson, I'm so excited for your big day! Tell your mommy that Granny said if unbeknownst is a word it is probably King James Version. (SMILE) I know that God put your mommy and daddy at the Ronald McDonald house to help lots of people, because they know Jesus is their friend and they can pass that along to others that might not know to call on him for answers. We will pray for your new friend and ask God to do another miracle in their lives. We love you precious one and are excited you just keep getting closer to going to your OWN home. You are going to LOVE it there! Blessings to you little one, Granny
I haven't had a chance to read this in a while, so I'm glad to see that he is doing great. We had the same problem with drs. We just let the NICU assign us one and they are obligated to see you if you are from the NICU (at least that's what we were told). Dr. Grote is going to see us for a while at least and then we will go from there he said. Tenny is the same size as Klay!! Your blog made me cry. I am so glad that I was able to help you. I don't know how sometimes, because I never really tried. I can't tell you how much I miss you and everyone at the NICU. You are and always will be my family. Our little one is doing well and I will try to update my myspace page with pics too. You guys are going to be home in no time. I promise, time flies very quickly once you find out when you are leaving.
Another great report it sounds like. You do such a terrific job at keeping us updated. We appreciate it so much. I'm anxious to hear more about the "Todo"! I know you are thrilled to be thinking about getting Tennyson home to start that phase of your life together as a family. Take care. Continued love and prayers -Alice
I agree with Mark. I good doctor is worth the drive. We had a similar situation when Ari left the NICU. The St. Joe doctors that were recommended to us were not accepting patients, so we settled on a doctor in St. Joe who was. We've been through a couple pediatricians and 3 years later we've finally learned that a good peditrician is worth the drive. We drive exactly an hour to our pediatrician in down town Kansas City. He's wonderful. Definatly worth the drive (yes it got old when we were doing it weekly, but you won't be doing it weekly forever - it only seems like forever while your your doing it) I only wish we would have chosen our KC doctor from the beginning.
Seeing the miracles God performs every day in little Tennyson will make you so much more aware of the beautiful miracles you see around you all the time that you start to take for granted. God opens your eyes in a whole new way. You will also be able to minister to other families who have precious little ones so early in a way that only you can because you KNOW what they are going through. We love to hear your updates and see everyday answered prayers in little Tennyson! Have you had a nurse named Kodee? We can't remember if she is a NICU nurse there or in the regular nursery-she is a wonderful Christian!
Love you
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